Chloe was born at twenty to seven in the evening and I remember so vividly the joy I felt that she was finally here. My tiny, perfect little girl who her Dad and I could share our home, life and love with. That night I couldn't sleep I was so excited and overwhelmed by what I had just done. How many other women had lain on the same bed before me unable to do anything apart from stare at their brand new babies?
Sometimes I catch myself staring at my now six year old daughter with that same sense of wonder. Every morning she climbs into bed, gives me an enormous wraparound cuddle, holds my head in her hands and tells me she loves me or giggles at something she remembers. I cannot measure the incredible joy she has brought us. Chloe, our unique deafblind child, teaches me about the world and I am incredibly proud every single moment of every day to be her Mum. I had no idea of the sadness that I would also carry, the fights I would have to have, the energy I would need to keep going or how I would take on a whole new role in order to survive.
I haven't always been a talker. My own experiences of being disabled have not been positive and led me to shut myself away. As an adolescent. I lived with an overwhelming sense of shame and a feeling that I did not fit. What turned me into the fighter I am today was learning how to speak up and accept myself, wonky hips and all. At 19 I emerged from a prolonged period of mental illness having found my voice. I had no idea that twenty years later I would be using it to such good effect to argue on behalf of my child and the other deafblind children in Devon for services to be reinstated.
On April 1st we get our key worker back, there will be more staff dedicated to supporting deafblind children and their families in Devon and section 7 assessments will once again be carried out. Thankfully newly identified deafblind children and their families will get the specialist support they so desperately need. The Rehabilitation Officers for Visually Impaired Children have also got the contract back to work in schools, ensuring all visually impaired children get independence and mobility training in the environment where they spend most of their day. Parents speaking up, coming together and campaigning using the Deafblind Guidance has enabled this change. Well done us.
Changer Maker of the Year 2014